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Data Work in Healthcare: Healthcare Providers’ and Patients’ Perspectives

    Join us for a CHIWORK conversation on October 20, 2022 at 11am EST with Dr. Mayara Costa Figueiredo.

    Healthcare practices have always been data oriented: healthcare providers decisions are based on data, both clinically generated and patient reported. With the increased use of patient-generated health data (PGHD), other types of data are entering healthcare practices and influencing patient-provider collaboration and individuals’ health experiences. The growth in PGHD use has the potential to change healthcare work by merging it with increased data work, which has been defined as “any human activity related to creating, collecting, managing, curating, analyzing, interpreting, and communicating data” (Bossen et al., 2019). When we talk about data work in health, we often think of healthcare providers, especially physicians, nurses, physiotherapists, and other healthcare professionals. But patients are an important piece in this context of health datafication and their data work has its own specificities that may impact the most varied aspects of their lives, their relationship with healthcare providers, and healthcare providers’ own data work. In this conversation we will discuss the challenges of tracking and engaging with personal health-related data for both patients and healthcare providers, how current self-tracking technologies shape individuals’ data work, and how data work is situated in larger ecologies of care. Besides addressing aspects directly related to data tracking, this discussion will also highlight factors embedded in data work that go beyond collecting and using data.

    Speaker: Mayara Costa Figueiredo

    Mayara Costa Figueiredo’s research interests lie at the intersections of HCI, CSCW, and Health informatics. Costa Figueiredo’s research focuses on the data work individuals perform when self-tracking for health. Her research examines how data work influences individuals’ daily lives, and how technological, organizational, and societal factors influence and shape individuals’ data work. She has been awarded the 2022 iSchool Doctoral Dissertation Award, the 2020 Microsoft Dissertation Grant, and the UCI Miguel Velez Endowment Scholarship for Latin American Scholars. Her research has been published in leading human-computer interaction and health informatics venues such as CSCW, CHI, JAMIA, and the Foundations and Trends® in Human-Computer Interaction. Her papers have received honorable mention awards at CSCW 2020 and CHI 2021, and the 3rd place award at AMIA 2017 students’ competition.

    Conversation Details:

    • Date: October 20, 2022
    • Time: 11am EST (US – eastern time)
    • Zoom link